Thursday, January 29, 2009

It's a vicious cycle

How many times have i been told something wrong about mikiya and her medical care,what would be wrong with her and what wouldn't ,of course there would be no guarentee's,she will have such huge disabilities,when we bypassed most of those disabilities and i actually had concern's,those concern's were ignored.
When i was told she wouldn't walk talk see nor hear i shunted my head and turned away,of course she managed to do all those things including walking,running and thinking for herself.
For the last two years as she has been walking had many concerns abot her feet and legs and the impact that the anhydramnios and oligohydramnios had caused,doctors said that there was no concern,even though mikiya had started the stages of clubfoot in the womb.
Her hips legs and feet had abnormalities and some excessive curvations,some were repaired,however some where not.
I have mentioned to her pediatrician that i have concerns and those being concerns that need to be dealt with now before she gets older then ends up in more trouble,after many diagnoses one including rhumatoid arthritis and sever growing pains...which is common for preemie's,especially ones that have grown 6 inches in less than a year.
So after discussing her limbs and there curvatures i was told that as mikiya grew her legs would straigten out and her feet,now as she is growing and i'm noticing that nothing is changing i bring it up to her pediatrician again,again i get the same story.
I know my daughter will never be 100% normal,but as a parent i have to make her as normal as i can,i also know that this is something so minute that she walked away with,after watching her continue to grow in this way my concern is for her pain,she is on no pain management regime and trust me she aches,there are some shoes that rub the wrong way and she is uncomfortable,she hates shoes boots and socks.
It turns out that a friend of mine in medical school has discussed mikiya issue's with a doctor from burlington,apparently he is a bone specialist and claims that i have the rght to a second opinion,and opinion in which i will seek.

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